Comments on: When you get “ticked”…

By: Gryphon

Gryphon — Mon, 09 Nov 2009 20:23:13 +0000

Hi Lolly – I’m way late to reading this, but I’d really like to talk to you more about your experience with Lyme, and maybe get the name of the doctor you mention. I was diagnosed with Lyme in August and got treatment, but I’m still not all the way well and my doctor just sort of shrugs and says, oh well, we don’t know any more. I don’t think I have your email… mine’s gryphon AT sanguinegryphon DOT com. Thanks for posting this!
Gryphon

By: Heather

Heather — Tue, 25 Aug 2009 01:34:02 +0000

I know I’m very late to the party, but I wanted to thank you for posting this. I was lucky enough to contract Lyme when I was living in Connecticut, a Lyme hotspot. I was educated enough to know my own symptoms, and my primary care doctor knew exactly what he was looking at. (I even got the distinction of having a reference picture taken of the rash on my back, since it was the largest and most perfect bullseye he’d ever seen.) Even with the immediate care I got, I was miserable when I had Lyme, and now, six years later, I still have relapses.

So thank you for raising awareness of this disease, and for being so honest and forthcoming about your own experience.

By: Kathy

Kathy — Thu, 02 Jul 2009 21:56:57 +0000

Thanks for posting. I too live in DC. My friend Maggi sent this to me. I just found it. I have been suffering for over two years – 15 months undiagnosed and 10 months of treatment. I think that I am getting better slowly. I always like to see people who have survived! I long to tell my story someday when I am better as well.

By: Jenny

Jenny — Thu, 18 Jun 2009 15:39:58 +0000

Hi!

A little late, but I just saw this entry! I think it’s great that you raise awareness!
Actually I just wanted to add that you can also send the tick in to a laboratory to see if it was infected with Lyme Disease. We have a lot of ticks in this part of Austria, so a lot of doctors recommend doing this. My dad did this last year, when he discovered a tick and it was actually infected with Lyme, but because they knew so early he could be treated right away to prevent the disease from breaking out. The only important thing is, to remove the tick carefully so that it is not damaged. I don’t know if that helps!

By: jackie

jackie — Tue, 16 Jun 2009 17:35:52 +0000

lolly, i really appreciate you posting this. i have a freind who is having issues after a tick bite, and her doctor is being dismissive of her because her lymes and rocky mountain spotted fever tests were both negative. they told her to come back in 6 months if it didn’t clear up. i am going to share this with her.

By: Wanda

Wanda — Sun, 14 Jun 2009 19:37:28 +0000

Thanks so much for sharing the information regarding Lyme Disease and how it affected you. I definitely think the awareness of the disease needs to be amped up. I am so glad that you are doing so much better too.

By: Kat

Kat — Sat, 13 Jun 2009 13:47:48 +0000

Thanks for sharing this information, and glad you are not only doing so well after your experience, but managed to actually improve your life with it.

By: Chandler (formerly Mome-rath)

Chandler (formerly Mome-rath) — Thu, 11 Jun 2009 03:36:13 +0000

Wow, what an incredible story. I’ve been reading your posts on the topic, but I don’t think I really understood what you were going through. And I had no idea how serious or life-long the struggle with Lyme’s can be. It sounds a lot like malaria (I have a friend who contracted that in Africa, and she’ll have to be careful for the rest of her life), actually.

Kudos to you for your discipline and all your hard work not only to beat the disease, but to come through it with a healthier, happier life. I wish you all the best.

And congrats on the Olympics tickets! Shout out some cheers for me (I love Olympic hockey, but it’s just not in the cards for us this time)!

By: Diane D.

Diane D. — Tue, 09 Jun 2009 23:45:25 +0000

I’m so sorry you had such a rough time! Maybe I missed it in the comments, but there’s one aspect to Lyme’s that I’d like to point out. You can have Lyme Disease and *NOT HAVE A BULLSEYE RASH*. My husband and two of my sons have had it, and none of them got the rash. This meant that it went undetected in my husband for several months, and we believe in the case of one son for over a year. The moral of the story is that if you live in area with known Lyme’s, it’s warm enough for ticks, and you have unexplained symptoms (such as fever, severe headache or neck pain, joint pain) please insist that the doctor do a blood test for Lyme – the ticks are so small that you might never even know you’ve been bitten.

I’m glad you’re doing so much better!

By: Lisa

Lisa — Tue, 09 Jun 2009 21:25:04 +0000

Thank you for sharing–especially the details. My son contracted Lyme’s from a tick bite at 1 1/2 yrs of age. The doctors only gave him antibiotics for 2 weeks since he had a negative result to the test for Lyme’s (even though he had a bull’s eye rash). He has been subsequently been diagnosed with Apraxia of speech which means that the connection from “mind to mouth” is impaired. I am still convinced that it stems from the Lyme’s. I myself contracted Lyme’s and had a bull’s eye rash, and within a few month’s was diagnosed with premature menopause (at 32) due to autoimmune problems. Then a few months later had more MS-like autoimmune problems. Lyme’s is serious. DO your tick checks!

Side note: we went to Disney World last week and found a tick on my son (before it burrowed). Yes, they even have ticks in Florida!